Posts tagged with #spoonie

#spoonie

1.6M posts
Too much too update, too tired to try.

Rest my bitches.✌&💜 #Insomnia #Painsomnia #EhlersDanlosSyndrome #EhlersDanlos #EDS #ChronicIllness #ChronicPain #Spoonie #Spoonies #SpoonieLife
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6 minutes ago
So I had my appointment with my internal med doc today & I made sure I wrote everything down that I needed to discuss with him. I was so proud of myself. We hit every topic & he started ordering tests & new referrals as he saw was necessary. I was very pleased. Then...he started asking me how I was feeling. My #brainfog just had to kick in & I sounded like a blathering idiot. I couldn’t make complete clear sentences, I was saying “umm...oh man, I forgot what I was gonna say...you know...like..” UGH! 🤦‍♀️ It was so crazy. I just couldn’t get my head together. As long as I had written down what I wanted to discuss with him, I was okay but the “unrehearsed questions”, I felt so lost & confused. He totally understood & went thru his questions slower until I could get my two cents out. I felt better, still like a fool, but better. Then when he gets up after we’re done, he always shakes my hand & I was prepared for it, I’m use to it. I go to thank him & I address him by every other dr’s name but his own 🤦‍♀️. “Thank you Dr G, thank you Dr M, uh I mean Dr R”. At that point I just had to laugh & I felt so much better when he laughed too. I know that my head was already filled with my concerns & then to hear what he had to say about new issues, I was just in the twilight zone when he started asking me his questions. It was unreal. I haven’t been that bad before with him. I guess I have to look at it as a good thing because he witnessed my brain fog & even tho he’s always been a “believer” & a fighter for me, seeing me in the brain fog state is new to him. My cells were even more crispy after that but I’m glad I got thru it. Now I just need to see a dermatologist for the first time as he wants a biopsy on the dark spots on my ankles & then to see my cardiologist again & I had an x-ray on my right hand.  It was a long day & my brain still is this state like this meme 😄 #this #sotrue #spoonieknows #fibrofog #this #sotrue #mytruth #myspoonielife #spoonie #myspooniejourney #chronicillness #chronicpain #chronicfatigue #truth #purpleness #invisibleillness #autoimmunedisease #spoonielife #spoonietruth #autoimmuneillnesses 
#unknownmemecreator 💜
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9 minutes ago
❤️ #health #chronicpain #chronicpainwarrior #toptags #chronicpainawarness #chronicillness #invisibleillness #chronicpainsurvivor #endurance #survive #invisibleillnessawarness #fatigue #disability #smilethroughthepain #spoonie #spoonielife #chromicfatigue #spoonieproblems #cfs #pain #chroniclife #spooniewarrior #spooniestrong #painsucks #autoimmune #fibromyalgia #crps #heretohelp #painwarrior @pankaj_pankaj_69
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11 minutes ago
I actually for once had an ok gastro appointment yesterday! I am getting my barium swallow and breath test rebooked as its highly likely i have small bowel bacterial overgrowth, and gastroparesis so im happy about that, the hospital are going to source me some linaclitide which is out of stock and the supplyer isn't supplying at all at the moment and linaclitide is a vital medication for me, i also got a few doses of picolax to use when ive been 3/4 days without moving my bowels to prevent regular impactions and small obstructions, which is going to be SO helpful! 🎉He said my colonic transit study came back as pretty rubbish with 7/8 markers being stuck in my pelvic region. A successful appointment at last, we usually fight like cat and dog haha. Anyway i finished my 24 hour ecg which is to look at what my heart rate is like on a typical day, i take my friend to a assessment for his benefits today, then drop by the hospital then im getting myself ready for London and seeing tge surgeon on friday, im very nervous and dont know what to think at the moment. I hope everyone has a fabulous day ☺️🦓🌟 #ehlersdanlossyndrome #zebrastrong
#zebrawarrior #potssyndrome #potsie #potsiestrong #scoliosis #osteoparosis #osteomalacia #gutdisorder#prolapsedpelvicfloor #bowelprolapse #gastricdysmotility #invisibleillness #chronicillness #chronicillnesswarrior #spoonielife #spoonie #spoonieproblems
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13 minutes ago
Simplemente somos. .
Sin más. .
Si asumimos nuestra grandeza natural e infinita, nos daremos cuenta que no necesitamos ninguna etiqueta 🏷 .
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Somos amor puro, esa en nuestra esencia, eso es lo que realmente nos define (los seres humanos necesitamos conceptos) SOMOS AMOR tenlo presente siempre. .
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El miedo que es el mejor amigo de nuestro ego es quien nos ha hecho olvidarlo. Hoy te lo recuerdo. .
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Hoy te invito a darte permiso para simplemente SER. 🎈 .
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Gracias por estar ahí ❣️
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 #eldolornoesellimite #sienteloquepiensas #dolorcronico #artritisreumatoide #AR #enfermedadesenvisibles #mindfulness #meditacion #atencionplena #fibromialgia #bienestar #medicinaholistica #superacion #coaching #psicologia #crecimientopersonal #motivacion #mujerespoderosas #mepoderamiento #saludable #fit #spoonie
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14 minutes ago
Entry 14

This building is a special place.

I feel very lucky to be getting treatment and participating in Research at the Bateman Horne center. Dr. Bateman is amazing, and she is an expert on ME/CFS.

I found out today that based off of my blood tests, I qualify for the Anti-viral treatment.

I start in January. I will keep you posted.🤞 #myalgicencephalomyelitis 
#mecfs
#chronicallyill 
#chronicillness 
#chronicfatiguesyndrome 
#strength
#hope
#treatment
#movingforward 
#spoonie
#spoonies
#wecandothis
#research
#livingwithcfs
#🍀 #🤞
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15 minutes ago
A slip of the grip and we fall. 
Down the rabbit hole.
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#katymatildaneoart #arttherapy #intuitiveart #expressiveart  #RecoveryArt #MentalHealthArt #InstaArt  #artspeaks #BPD #CPTSD #dissociativeidentitydisorder #Mentalhealthawareness #spoonie #InvisibleIllness  #Takebackcrazy  #mentalhealthmatters #traumasurvivor #abusesurvivor  #suicidesurvivor #mystoryisntover #mentalhealthrecovery #therapy #recoveryispossible #recoveryisworthit
#psychology #endthestigma
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17 minutes ago
🙏A huge thank you to everyone who held an October Social event for Save Samantha. We have some amazing fundraisers lined up over the next few weeks ranging from fitness classes to a Santa's grotto!🎅
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17 minutes ago
it's alen and I's 2 year anniversary. he has been my rock and has stuck by my side throw an immensely hard time.

when you're 18 and you start dating someone, you expect to be able to have fun and have adventures. usually it's not filled with health issues and er visits. 
he has stuck by for 2 years of tests and hospital trips and sleepless night and severe mood swings and has seen me at my lowest and has done nothing but tried to help me build myself up again. 
I love him with all my heart and I hope to be able to manage my illnesses to be around for a long while 
#anniversary #stonercouple #gastroparesis #wholemeal #chicken #420 #cannabis #medicalstoner #medicaluser #potnotpills #datenight #spoonie  #2years
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22 minutes ago
@theunchargeables 
#ImStillME
#INStv .
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#mustwatch #LoveLuna #fight #fibro #fibrofog #fibrosucks #fighter #fibromialgia #fightlikeagirl #spoons #spoonie #spooniemom #spoonielove #spoonielife #spooniediet #spoonieproblems #spooniestyle #spooniebeautytips #spooniebeautyjunkie #spoonietuber
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25 minutes ago
@yourachingart_m.e 
#ImStillME
#INStv .
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#mustwatch #LoveLuna #fight #fibro #fibrofog #fibrosucks #fighter #fibromialgia #fightlikeagirl #spoons #spoonie #spooniemom #spoonielove #spoonielife #spooniediet #spoonieproblems #spooniestyle #spooniebeautytips #spooniebeautyjunkie #spoonietuber
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25 minutes ago
The reveal of our brand new product launching in March 2019 blew my mind. It’s going to be a game changer for all my #spoonie friends! A completely 💯% natural energy drink which is fast acting and long lasting!!! Can’t bloody wait to have this in my hands! 
#Lift #EnergyDrink #Natural #newproductlaunch #exciting
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27 minutes ago
I've made so many bad choices which lead to negative actions which lead to horrible consequences. I don't know how to correct my wrongs. In some cases it isn't possible at all. I wish I can be forgiven by every person I've ever hurt. I wish I can get rid of the shame and self-doubt I carry. I wish I could trust my own judgement, but only confusion reigns now. And now, with the ME, I have nothing but days of isolation and silence to dwell on all of these things. Regret, regret, regret, it engulfs me like a tidal wave.

#badchoices #shame #regret #forgiveness #selfdoubt #selfesteem #doubt #anxiety #ifonly #confusion #consequences #loss #ME #CFS #chronicillness #chronicfatiguesyndrome #invisibleillness #myalgicencephalomyelitis #spoonie #spooniesisterhood #spoonielife #isolation
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28 minutes ago
Tomorrow I see neurology. I'm super nervous about this appointment, I'm always nervous to see Neuro. It's been 8 years and no one can figure out my seizures, but tomorrow we go back to the drawing board. Thankfully this Neuro is kind, which I find is rare. Hopefully she's as smart as she is kind, hopefully she has some new ideas. #betrayalofthebody #undiagnosedseizures #seizuredisorder #ehelersdanlossyndrome #cancersurvivor #lupronsurvivor #endometriosis #medicallimbo #chronicillness #invisibledisability #thespooniesisterhood #spoonie #zebrastrong
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29 minutes ago
I’m selling shirts and the link is in my bio!
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So if you follow me closely you know my motto is “Come What May.”
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Basically this means what ever comes my way, bring it on because I can handle it!
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#comewhatmay #chronicillness #autoimmune #autonomicdysfunction #healthjourney #spoonie #spoonielife #wellnessjourney
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40 minutes ago
Today was a doozy... woke up planning to take my last biochem exam EVER but my body had a different plan in mind. Ended up in urgent care getting 1L IV saline after refusing to go to the hospital in an expensive ambulance, but thought this would be a perfect time to share some materials (pics 1 & 2) that I have started to bring with me to urgent care and the ER, as well as just keep on my person in case of emergency. It honestly saves a lot of hassle and explaining, plus people tend to take me more seriously when they see that I was prepared with documents. 
Swipe left 👈🏼👈🏼 👈🏼to see the magic that is IV saline! First video is from last night, showing what my hands normally look like at the end of any given day: swollen red sausages, and my ring stuck on my finger. 
Second video was 20 minutes after my 1L IV fluid bolus, and what my hands *should* look like normally: appropriately sized, minimal water retention and normal flesh coloring. 
Due to my rapid decline, I will be starting IV saline treatments at my urgent care facility once a week until I am able to meet with my GP the first week of December to discuss a temporary PICC line for at home fluid therapy with the hope of later transferring to a chest port if fluid therapy proves to have a significant positive effect. I’m scheduled to see A LOT of doctors over the next 6 weeks — some new, some old. Tomorrow I meet with neuro, Friday I have an echo with a cardiologist in Boston, next week I meet my new allergist for MCAS management, the following week I’ll meet my new EDS specialist, then my POTS specialist, and finally my OBGYN at the end of the year to discuss my next endometriosis surgery. 
This is an incredibly difficult time for me, but I am growing through my frustrations and learning that chronic illness is never going to be something I will find “remission" from. This will be a life long battle of finding a balance between symptoms and treatments. I do feel indescribably blessed to have a community rooting for me to overcome these obstacles and thrive with my conditions instead of merely surviving them. Thank you for reminding me to kick ass every day, couldn’t do it without y’all🤟
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41 minutes ago
$270 left until we reach the $3000 mark! Thank you all for your donations up until this point. 
As many of you know I was admitted to hospital 10 days ago to stabilise my eating disorder, suicidality and self harm coping strategies. Those issues are still present and we are still working on them. A service dog would go a long way in reducing my anxiety whilst in hospital, as well as serving to mitigate the risks. 
Please consider donating if you can. It would mean the world. 
Link in bio
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42 minutes ago
Come get your #selfcare on. Link in bio. 💙💜
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Join us for the 2018 Care Fair, a self-care and wellness event hosted by @SufferingtheSilence & @Wellacopia. Created for the #chronicillness community & their friends and allies.
Sat, December 8, 2018
Hub Seventeen - 114 5th Avenue
3:00 PM – 6:00 PM EST
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42 minutes ago
I love having a flare up during one of the most stressful times of my life !! :))) Might have to go back to taking my prescribed dosage of ibuprofen even though it fucked up my appetite. Ugh why can’t my orthopedic appointment come sooner so I can start physical therapy???? #nichememes #nichememe #memes #meme #chronicillness #spoonie #spoonies #eds #heds #physicaltherapy #therapy
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44 minutes ago
Painsomnia is real. Husband, dog, and cat are all sound asleep in the bedroom. I’m wide awake, trying to ignore the pain, and staring at the ceiling. Must have been the cold weather that brought this on. All I know is I’m jealous of the pretty sleeping ones. ________________________________________________________ #arthritis #psoriacticarthritis #psoriacticarthritissoldier #psoriaticarthritiswarriors #chronicillness #chronicpain #chronicpainawarness #spoonie #spoontheory #pain #rheumatoidarthritis #rheumatoidarthritisawareness #rheumatoidarthritissucks #fibromyalgia #fibromyalgiasucks #fibromyalgiaawareness #painsomnia
0
an hour ago
||| #worlddiabetesday 2018 ||| When I was diagnosed with diabetes in my early twenties it felt like I had been handed the ultimate sh!t sandwich. I now had two chronic illnesses to manage. ...Oh and I was freaking terrified of needles. 💉

Unlike my CF diagnosis which I was too little to remember I clearly remember the emotional roller coaster of being diagnosed as diabetic.

CF related diabetes isn’t type one or two. But is generally managed more like T1 and most patients require insulin.

What many people don’t understand is there’s a few unique challenges to CF diabetes. You aren’t “only” managing the impacts of each disease but also, the challenges and interactions they have on one another. Invisible struggles like... The importance of tight blood glucose control is even more critical because high sugars contribute to infection in the lungs... but the “fun” part is that infections also cause high glucose💩🙄 CF patients are also often on medications like steroids that make blood glucose control more complicated. Steroids sky rocket blood sugar levels and/or create instability. 💊

Poor blood glucose control can also cause dehydration. 💧Dehydration makes clearing CF airways much more difficult. Personally I have to plan very carefully around eating and ensure my blood glucose levels are optimal before even attempting my 3-4 hours daily of physiotherapy. 😴

Many CF patients struggle with gaining weight and use high carbohydrate diets to try and gain weight... of course carbs increase blood sugar levels and increased blood sugar levels along all the other serious long term impacts on the body, can lead to weight loss. For me, this is why a lower carb diet high in good fats is the easiest way for me to balance both these needs. 
And then there’s the “simple” fact that Diabetes means more tests, more monitoring and more medications... {continued in comments} 📸 @torijacksoncreative
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an hour ago
😞😞😞😞
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#mybodyhurts #mysoulistired #chronicillness #chronicpain #chronicfatiguesyndrome #chronicpainwarrior #fibromyalgia #depression #anxiety #nervedamage #documentinglife #chronicallyfabulous #chronicallyliving #heath #recoveryquotes #spoonie #invisibleillness #chronicpain #chronicpainwarrior  #thearapy #hospital #idontlooksick #imsick #tired #life #patient #suffering #instachronic #instahealth #copingwithanxiety #copingwithfibromyalgia #arthritis
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an hour ago
Current benchtop. I’ve got a few busy weeks ahead 😅😅
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an hour ago
I added this to my highlights as I love the #spoontheory so simple yet explains daily life as a #chronicillness sufferer perfect... you have 12 spoons a day how would you use yours? You can borrow off your future self but you leave yourself with less for tomorrow then..... #12spoons  #spoontheory #spoonie #spoonielife #spoonies #spooning #spoonieproblems #chronicillness #chronicpain #arthritis #arthritiswarrior #autoimmunedisease #helpingothers #explained #clean #cleaninghacks #hincharmy #pain #disability #strong #brave #fighting #wegotthis #helping #itsnicetobenice
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an hour ago
Today marks the halfway point in my 30-day Anti-inflammatory Diet test! And I am already noticing how much more interested in ingredients and reading nutrition labels. Knowing what's in my food is the first step to a healthier, happier me. 
#interstitialcystitis #interstitialcystitiswarrior #bladderawarenessmonth #ic #icdiet #antiinflammatorydiet #endo #endometriosis #chronicillness #invisibleillness #spoonie #spoonielife #diet #challenge #30day #foodie #healthyfood #healthyeating #cleaneating #inflammation #halfwaythere
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an hour ago
No risk, no life...
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❤️ #health #chronicpain #chronicpainwarrior #toptags #chronicpainawarness #chronicillness #invisibleillness #chronicpainsurvivor #endurance #survive #invisibleillnessawarness #fatigue #disability #smilethroughthepain #spoonie #spoonielife #chromicfatigue #spoonieproblems #cfs #pain #chroniclife #spooniewarrior #spooniestrong #painsucks #autoimmune #fibromyalgia #crps #heretohelp #painwarrior
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an hour ago
Filtered versus reality... it’s one of those nights where the pain feels unreal and just existing feels impossible. •
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My body doesn’t feel like my own right now, i am consumed by pain.  My entire mouth is raw and bleeding, my nose is burning non stop,  my skin is extremely dry and tender,  all of my joints feel like they are tearing apart from themselves, and my head feels like one side is exploding off. 
When i move i feel like I’m going to cry, scream, vomit and pass out simultaneously.  I passed out yesterday after standing up, and have found that recently standing almost always causes a racing heart beat and nearly passing out.  Also I’ve been having fevers more and more recently. •
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This is not normal and i have no idea what’s going on but I’m exhausted of being exhausted. 
I just want answers or relief, if anyone has any idea about what’s going on, I’d love ideas. 
My ANA was quite high on the last blood tests, so I’m seeing a rheumatologist next week. 
#chronicallyill #chronicpericarditis #spoonielife #chronicfatigue #chronicillness #chronicpain #spoonie #pericarditis #bedrest
2
an hour ago
#mandala #mandalameditation #mandalalover #sacredgeometry #fractals #symmetry #pattern #mirroring #abstract #experimentalphotography #mirrorlab #photodirector #green #spoonie #spoonielife #spooniejoys #lightinthedark
0
an hour ago
Brain fog humor 😊
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#perniciousanemia #spoonie #autoimmunedisease #chronicillness #brainfog #ithappens
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an hour ago
Sometimes it feels like harder patches in life just seem to continue, and over lap, and get increasingly worse, but at some point, it always passes, it has to. Chronic illness doesn’t suddenly disappear, or even ‘pass’, but every day I know I learn how to manage my illness a little better than I did the week before, or month, and most definitely year before. If you haven’t yet, in time, you will. ⁣
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⁣#invisableillness #mentalhealth #mentalhealthawareness #mentalillness #mentalhealthmatters #chronicfatigue #chronicillness #spoonie #spoonielife #mentalillnessawareness #mentalillnessrecovery #anxietyattack #fibromyalgia #fibro #disability #endometriosis #endowsrrior #depression #anxiety #panicattack #mentalbreakdown #mentalhealthblogger #blogger #ME #CFS #IBS ⁣ #mentalhealthmatters #disability #fibro #panicattack
1
an hour ago
Cada mente y  cuerpo es diferente. Every mind and body are different. Sharing this message from @upsidedownchronicles as a gentle reminder that we shouldn't make assumptions or comparisons when it comes to another person's health experience.
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@upsidedownchronicles says: "Everyone’s symptoms are different. You might have the same illness but live with different demons. You can no more judge how a person will act by their diagnosis than you can judge how they will act by their hometown. Everyone is different 💫What assumptions do people make about you?"
PD: a line drawing of a fingerprint. each line in the pattern is a different color. Text forms within the lines of the fingerprint pattern reading: ‘A person’s symptoms are as individual as their fingerprint. Make no assumptions.' •••
#invisibleillness #mentalhealth #mentalhealthawareness #chronicillnesswarrior #mentalhealthmatters #mentalhealthday #chronicfatigue #chronicillness #spoonie #spoonielife #mentalhealthwarrior #mentalillness #fibromyalgia #fibro #lupus #PTSD #cancer #disability #eatingdisorder #recovery #ehlersdanlossyndrome #potssyndrome #endometriosis #endowarrior #depression #anxiety #crohns #themightysite
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an hour ago
My #humpday motivation 🍑 my little hotel workout from the start of the year. The last time my stomach was flat whilst my ass was fat... now it’s all just fat 😩😢 I am trying my best but I’m just exhausted at the moment. Just having to be a normal functioning human is too much for me right now 😔 But again, I will be trying to fit a workout in. It’s either that or cover up all the mirrors in the house 🙈 #wednesday #motivation #fitness #fitnessmotivation #booty #abs #gains #legday #hotelworkout #homeworkout #weightlossjourney #fitfam #fitgirl #thickfit #fibrowarrior #spoonie #recovery #maythestomachgetflatterandtheassgetfatter #soca #workout #mixedgirl #strongwomen
1
an hour ago
Sometimes having a chronic illness feels like you’re on a merry-go-round. You can go from one hospitalization to another in a weeks time. At times it can be a vicious cycle but you do what you gotta do. Eventually merry-go-rounds slow down and eventually stop and struggles are only temporary. Best advice I can give, is to not be discouraged. Take it one step at a time and know you are not alone and there support out there. The Spoonie community is so supportive and full of caring and understanding remarkable individuals who will cheer you on, lift your spirts and lend you that helping hand. So please don’t even be ashamed or embarrassed to reach your hand out for help. Remember you are stronger than you know and give yourself credit for. •
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#hospitallife #ER #spoonie #chronicillness #spooniecommunity #iaminvincible #iamresilient #ichoosehappiness #ichoosejoy #support #raredisease #mastcell #cvid #eds #gastroparesis #autoimmunedisease #zebrastrong #hypokalemia
2
an hour ago
Current mood ✌️#positivevibes #currentmood #smile #selfie #strikeapose #curlyhair #spoonie #curlsfordays #faith #sonrisa #spoonielife #naturalhair #curlyhairdontcare
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an hour ago
Guess who finally got their cast off, post op #achillestendonlengthening ?! 🎉🎉🎉
I am so relieved to finally be out of a cast after 7 weeks! 🙈

The plan is :
• To be in a Moonboot for 2 months & Weight-bearing using crutches.
• Start Physiotherapy soon to build up Muscle Tone & strength in my leg. (Because after 7 weeks non-bearing weight,it's inevitable to lose muscle tone & have weakness unfortunately). 🤷‍♀️
• Do Seated heel raises 5 times a day
• I will see my surgeon in 4 weeks time to see how my recovery is going.

I'm super eager to start my recovery & rehabilitation on my leg asap. 🙌

In other exciting news-i can finally go back to having decent showers again,finally! 😍😂
I can take my moonboot off to shower, exercise and sleep but other than that,it has to be on at all times.

I also have requested to have a copy of the video my Surgeon took of my surgery 😷
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an hour ago
121- Art 🌸 I am so grateful for the ability to constantly create. It is something that continues to help me cope and keeps me busy. Today, Summer got a hand painted replica of her paw to add to the tree this year 🐾❤️ #attitudeofgratitude #100daysofgratitude •
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#lymedisease #lymewarrior #lyme #lymedontkillmyvibe #pots #posturalorthostatictachycardiasyndrome #chronicillness #chronicpain #chronicfatigue #myalgicencephalomyelitis #ptsd #mentalhealth #mentalhealthawareness #gratitude #gratitudeeverydamnday #stemcelltransplant #spoonie #huskiesofinstagram #husky #pawprints
4
an hour ago
STAGE & CHRONISCHE AANDOENING | Het kan best lastig zijn om stage te lopen met een chronische aandoening. Anderzijds is het een mooie manier om te ontdekken wat bij je past. ☺ .
Maar wat vertel je tegen je stagebegeleider over je aandoening? Ben je eerlijk en vertel je alles, of laat je het achterwegen? .
In onze blog lees je wat je het beste kunt doen in zo'n situatie. En, ons teamlid Nathalie deelt haar eigen ervaring toen ze op stage niét verteld had dat ze chronische pijn had.. Of dat de beste keuze was.. Je leest het via de link in bio 👉 @ervaringscentrum
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Heb jij op je stage vertelt dat je een functiebeperking hebt? Hoe werd er op gereageerd?
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#ECJP #ervaringscentrum #jongerenmeteenbeperking #chronischziek #chronischmoe #beperking  #spoonie #onzichtbaarziek #acceptatie #gezondheid #persoonlijkadvies #hulp #ziektevanlyme #schisis #ziektevancrohn #reuma #depressie #angst #autisme #mentalegezondheid #school #studie #opleiding #student #kansen #mogelijkheden #werk #ondernemen #werkenmeteenbeperking
0
an hour ago
#spoonie #spoonielife #spooniesisters #spooniebloggers #blogger #spoonieblogger #invisibleillness #butyoudontlooksick #chronicillness #chronicpain #fibro #fibromyalgia #crps #crpsawareness #crpswarrior #chronicfatigue #chronicfatiguesyndrome #cfs #cfsme #myalgicencephalomyelitis #spoonies #spooniestrong #disabled #spoonieblogger #chronicillnessflare #flare #pain #chronicillnesswarrior #hope
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an hour ago
This look. 😍 My girl knows when her mama comes home and is not okay. Very briefly we (by we I mean mostly she) worked on tactile stimulation and deep pressure therapy, but my stomach wasn't up to the DPT and my mind wasn't up to training. She knew enough to lick my face  and break the spell and encourage me to keep applying T-touch but it wasn't enough. One day she'll get there, but not today. Today the panic attack won. Almost none of my Wal-Mart list complete and I'm crashing in PJ's and shame.

#ptsd #cptsd #posttraumaticstressdisorder #complexposttraumaticstressdisorder #generalizedanxietydisorder #anxiety #panicdisorder #panicattack  #agoraphobia #vertigo #ibs #depression #insomnia #chronicpain #chronicillness #spoonie #spoontheory #spoonielife #servicedogprospect #yellowlab #whorescuedwho
1
an hour ago
I really love this pupper, he gets me through my rough days 💕 He’s almost always down to cuddle 😌❤️ I treasure every moment with this pup, he’s pretty old now and he’s been through a lot. So I’m glad he’s still here, and it doesn’t look like he’ll be saying goodbye anytime soon 😌
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Do you have a pet? What do you love about them?
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I hope you’re having a tolerable pain day 💜
1
an hour ago
Slide left!
This spoon is 80% complete and now drying above the wood stove.  Once it’s dry it will be ready for some clean-up with finishing cuts.  I’m eager to see the spalted colors pop when oiled up!
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#edc #birch #nature #spoon #spoons #spoonie #spoonielife #cherisheverymoment #amazing #beautiful #tactical #food #traditional #sloyd #slöjd #alaska #palmeralaska #trees #handmade #sustainable #sustainability #quality #food #lifestyle #craft #handmade #handmadecrafts  #functional #wood #woodcarving
0
an hour ago
😂 #notmine #autoimmunedisease #invisibleillness #chronicpain #chronicillness #spoonie
0
2 hours ago
Well tonight at work i only managed to stay until 4am...but you know what, thats 9 hours more than i was managing 3 months ago! Having a chronic illness is hard...and sometimes it knocks you down when you least expect it...but thats okay as long as you pick yourself up again!

#chronicillness #chronicpain #endometriosis #endosucks #enodeducation #adenomyosis #menopause #medicalmenopause #sideeffects #pain #endometriosisawareness #1in10 #oneinten #spoonie #saveyourspoons #decapeptyl
0
2 hours ago
What is THIS? It’s your chance to win this fabulous makeup bag full of  goodies I customize just for you worth over $50! How you ask? I need at least 10 people to participate. Send me $25 through paypal and go to my website to let me know what you would like to purchase. I’ll order it for you and you will be entered to win!!! You can spend more if you like. Every dollar equals an entry. No Facebook party necessary. I will announce the winner on 11/21!!! If you love Sephora, Ulta, Fenty, or whatever makeup brand, I ask you to give BeCause a try!!! I promise I will spoil you far more than them AND you get to help me out! My paypal is soulcarrot@yahoo.com If we don’t reach the 10, I will refund your money unless you want to keep your order. I can’t wait to see who wins this bc I’m going to pick the perfect products for you as well as some fun items that I think you will enjoy! (FYI - not all of these products will be in the bag, but one or two may be!) Link in bio.
1
2 hours ago
205 x 5 x 5 ☠️ .
Everything moved well. I felt like shit, though. I felt fatigued after the 2nd set. I didn’t think I was going to be able to finish strong but once again it’s MIND OVER MATTER. I took bigger breaths, drilled my heels into the ground, and finished all of my sets and reps strong. .
I love lifting so much. It never gets boring. I’m always learning new things about myself. Reaching new goals. Even if they’re not necessarily physical strength related but all mostly mental. The weights help me show myself how strong I really am, how much more I can do, how much farther I can go. I love that I can force my body to keep going and lifting even after it feels like I can’t do one more rep. Then to turn around and do 5 more or even ten more reps. I live for this shit.
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#squatbenchdeadlift #squats #legs #lighterdays #lightweight #fatigue #liftoftenasineveryday #gwpl #girlswholift #weights #training #barbell #womenwithmuscle #momswithmuscle #dedication #determination #perseverance #spoonie #gymshark #sbdkneesleeves #chucks #fun #hardwork #mindovermatter #strength
1
2 hours ago
37 views
Praising God! Thank you! #blessed #spoonie #jesus #potssyndrome #pots #chronicillness #eds #posturalorthostatictachycardiasyndrome #rn #autonomicdysfunction #autonomicnervoussystem #believe #bibleverse
1
2 hours ago
Looks like a certain someone beat me to my reading spot. This pillow is great for sleeping with chronic pain and I wanted to test out reading with pain. How am I supposed to get her to move when she looks so cute? 
#spoonie #reading #dogstagram #dogsofinstagram
0
2 hours ago
If you are struggling to find a lighthouse, maybe it’s time to find a way, to be your own beacon of light.
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#chronicdisease #chronicillnesswarrior #spoonie #chronicfatigue #beaconoflight #fibrofighter #fibromyalgia #chronicpainwarrior  #positivementalhealth #burnout #invisibleillness #butyoudontlooksick #butyoudontlookill #myalgicencephalomyelitis 
#anxietyrelief #spooniestrong #spooniesupport #chronicillnesssupport #naturephotography 
#chronicbackpain 
#spooniesunite #migraine #chronicillness #lymedisease
#posturalorthostatictachycardiasyndrome #positivethinking #positivevibes #hope
1
2 hours ago
Poor quality photo 😂❤️. But I heard a real “high quality” thing at institute today that I wanted to share with you guys 
A guy in Instiute was talking about how over the summer he had a Job that he was REALLY good at.
His boss, and everyone would compliment him.
And he would either just brush it aside. Or tear himself down. 
And one day his boss went to I’m and said “ you know by knocking yourself down.. your not being humble.. Tearing yourself down isn’t humility. 
And humility is giving the credit to God. .giving credit where credit is do.. and when you knock yourself down.. your not giving God the credit he deserves.. “

When he said that.. my mind was blown 🤯❤️ I had never really thought of it that way, I absolutely loved what he said. ( Because it is SOO true!! ) 
And I really honestly needed to hear that! 
I hope one of you all did to ❤️. #smileon🐷 #smallandsimplethings #sickchickstrong #memberofthechurchofjesuschristoflatterdaysaints #spoonie
0
2 hours ago
It might look like a bloated or overweight belly, fear not - it’s just an “Endo flare up” But; in the reality of my world it’s so much more! // it’s the stress of starting a new medication that makes me incontinent (a 23 year old nearly💩 themselves on the daily is pretty great), It’s the fear of burdening people by speaking up, it’s the fact you can’t do your job properly, it’s the strain on your relationships because your anxiety is at an all time high, it’s making plans and worrying you’ll need to cancel last minute, it’s stabbing sharp pains inside you, it’s aches all down your legs and it’s looking like you’re 5 months pregnant 🤰.. // let’s all learn to be a little more sensitive. // #endosisters #endo #endometriosis #PCOS #polycystic #cysters #endoawareness #chronicillness #ovaries #uterus #pain #fighting #fightlikeagirl #spoonie #spoonielove #invisibleillness #women #strong #girlssupportinggirls
2
2 hours ago
Check out this @blink182 merch that will help provide relief for those affected by the fires here in California
1
2 hours ago
Sometimes you need something super soft and snuggly for the days with a lot of joint pain. I’ve had a lot of flares the past few days with my joints due to weather. Swipe for a snippet of my most recent cover ✨ link in bio angels 🌹
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* #yestonandkopit #mytruelove #phantom
#poto #christinedaae #erikmulheim  #erikdestler #christinedaaecosplay #phantomoftheopera #chronicillness #modernvictorian #soprano #coloraturasoprano #potssyndrome #dysautonomia #tillihearyousing #phantomandchristine #phantomoftheoperamusical #spoonie #edstype3 #oldfashionedsoul #loveneverdiesthemusical #victorianstyle #Victorian #chronicpain #smallyoutuber #daae #victoriancosplay #Victorianera #angelofmusic
0
2 hours ago
Incredibly unbroken sentence
Moving from topic to topic
No one had a chance to interrupt, it was quite hyptonic. Ahh I love data and Picard by pogo. It’s good to the ears! #me #selfie #music #pogo #lyrics #edit #editoftheday #random #fun #spoonie
1
2 hours ago
Today's blog post: 🧓Professor Malone-Lee's son, 🧑Dr.Matthew Malone-Lee, joins their private UTI clinic tomorrow at 10 Harley Street in London, UK. They treat patients with chronic urinary tract infections and have found low-lying and embedded bladder infections in those who were diagnosed as having "no infection" or "interstitial cystitis" from their doctors.👨‍🔬👨🏻‍⚕️ Desperate and near-suicidal international patients from all over the world have seeked the Prof's help.🌍 Full details on blog post, link in bio.👆🏻 Prof and Chronic UTI Info have given me permission to post this news. If you have any QUESTIONS, read the blog post FIRST as it may answer your questions. ✉🚫I do not read DMs (no direct messages).
7
2 hours ago
Trying to look fancier than I feel.  My eyes a red and puffy... because the hard truth is when I get overwhelmed by pain I just cry. Today I cried a good cry because everything hurt. But now the medicine is slowly kicking in and maybe I can spend a bit of time not hurting before sleep. Tomorrow's goal makeup! The full face. 
#mommakeup #makeupblogger #youniquebygingerpeas #gingerpeas #younique #rawarrior #spoonie
0
2 hours ago
Thank you so much to Beth Crowley and my cousin Taylor

Taylor reached out to Beth since she is my absolute favorite and Beth sent me the nicest card and CDs. 
Thank you both so much. 
Beth you will never know how much this means to me and how much happiness your music has brought me. 
Health update: 
There has not been any huge progression today. 
My neck and cheek are reached the point of numbness but it is very mild right now so I’m not concerned about it. 
My legs feel like “wave man” when I walk. To put it short, I look and feel like I am going to tip over at any second. 
When I move my right arm there is a sharp pain, again not worried about it because if I don’t move it stops. (Probably not the right way to look at it but it is working for me right now). Went in and my fever was at 100.6 today. While we were in my doctor saw me and we asked about the armpits thing. There is one swollen lymph node right now but it could also just be my body being it’s annoying self. We are not going to worry about the lymph node situation unless they start popping up all over. 
Lastly, I checked my weight and ☹️. We have been blaming my weight loss on having done bowel preps and all, but typically my weight would have come back up or at least gone up slightly. Unfortunately it has not and it may now be due to muscle wasting. 
On Monday my PT asked about it and I wasn’t sure but now I am thinks that too, since it has been a while between prep and now and the fact that it hasn’t gone up still. 
Forgot to mention it today while I was at the doctors but I will probably be there tomorrow, so might mention it, but she likely already knows just my looking at me. I can tell by looking in my he mirror and she knows me as well if not better than I do 😉
1
2 hours ago
The morning is God's way of saying; one more time, go make a difference, touch a heart, encourage a mind, inspire a soul and enjoy the day.
1
2 hours ago
Where ever music plays, I know.... I am home 🌹✨ (new video is on my channel. Link in bio angels) *
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#yestonandkopit #mytruelove #phantom
#poto #christinedaae #erikmulheim  #erikdestler #christinedaaecosplay #phantomoftheopera #modernvictorian #soprano #coloraturasoprano #pointofnoreturn #edstype3 #tillihearyousing #phantomandchristine #phantomoftheoperamusical #loveneverdiesustour #potssyndrome #oldfashionedsoul #loveneverdiesthemusical #victorianstyle #Victorian #dressinggown #beneathamoonlesssky #daae #victoriancosplay #Victorianera #angelofmusic #spoonie
0
2 hours ago
*All Questions please send via DM only ✓This page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
✓please follow like the posts most importantly give your support to the questions/ person needing advice
Stay strong 💪💜 #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease  #crohnssucks #colitis  #colitisulcerosa #arthritis  #arthurmemes #hatebeingsick #ostomy  #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
11
2 hours ago
As long as I feel this pain, I'm alive right? And IF I can feel something, it means have have feelings. Then why does everyone else say otherwise?  #spoonie #character #art #sketch #quicksketch #doodle #drawing #illustration #instaart #instadraw #blackgirl  #anime #animegirl #sad #cry #tears
0
2 hours ago
*All Questions please send via DM only ✓This page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
✓please follow like the posts most importantly give your support to the questions/ person needing advice
Stay strong 💪💜 #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease  #crohnssucks #colitis  #colitisulcerosa #arthritis  #arthurmemes #hatebeingsick #ostomy  #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
0
2 hours ago
*All Questions please send via DM only ✓This page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
✓please follow like the posts most importantly give your support to the questions/ person needing advice
Stay strong 💪💜 #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease  #crohnssucks #colitis  #colitisulcerosa #arthritis  #arthurmemes #hatebeingsick #ostomy  #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
10
2 hours ago
*All Questions please send via DM only ✓This page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
✓please follow like the posts most importantly give your support to the questions/ person needing advice
Stay strong 💪💜 #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease  #crohnssucks #colitis  #colitisulcerosa #arthritis  #arthurmemes #hatebeingsick #ostomy  #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
0
2 hours ago
*All Questions please send via DM only ✓This page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
✓please follow like the posts most importantly give your support to the questions/ person needing advice
Stay strong 💪💜 #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease  #crohnssucks #colitis  #colitisulcerosa #arthritis  #arthurmemes #hatebeingsick #ostomy  #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
1
2 hours ago
Did some research today to get a game plan going for shopping textiles tomorrow in LA. I got some ideas for stores, but I think just going to the fabric district, starting with some stores I looked at online first and then exploring 8th and 9th Streets hopefully will get me the fabrics I need. If I need to, I can go back on Thursday. Anyone have any suggestions of stores that you like in downtown LA? Looking for stretch denim, stretch summer weight wools, printed pinwale corduroy and cotton prints. Your input will be greatly appreciated. 🙏🏼. If you would like to see what is in my Adaptive Line so far, please go to my website at: www.barbarabecciodsideratum.com. Click on E ISPIRANTE and SHOP to get more information and to see the Line. If you would like to help support my Adaptive Line, please go to www.gofundme.com/e-ispirante.  #adaptive #adaptiveclothing #adaptiveskirts #losangeles #sanfrancisco #california #nyc #melbourne #brisbane #scotland #edinburgh #dream #believe #nevergiveuponyourdreams #diversityinfashion #inclusionfashion #instagramkids #kidsfashion #adultfashion #wheelchairfashion #wheelchairmodel #wheelchairgirl #wheelchair #wheelchairstyle #paraplegic #quadraplegic #spinabifida #spinalcordinjury #cerebralpalsy #spoonie
0
2 hours ago
*All Questions please send via DM only ✓This page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
✓please follow like the posts most importantly give your support to the questions/ person needing advice
Stay strong 💪💜 #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease  #crohnssucks #colitis  #colitisulcerosa #arthritis  #arthurmemes #hatebeingsick #ostomy  #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
4
2 hours ago
YES. I don’t think you can affirmation your way into loving yourself (although I’m happy to be proven wrong!). I believe you come to love yourself by choosing over and over again to treat yourself like someone you love. So if you haven’t opened your mail in a year, or aren’t drinking enough water or eating enough vegetables, or haven’t been to a dentist in way too long, you don’t use fear and and shame and self-recrimination to motivate yourself. You make a choice to do these things for you because these are the things you would do for someone you love. What do you to let yourself know you’re on your own side? 
today: morning snuggles; E doing all the heavy lifting this morning; S making O’s lunch; O listing for me all the things he can do now that he’s bigger and delight at riding the tagalong; that my colleague who had been evacuated is safe; quiet, calm morning; lunchtime walk; making it to the gym; walking home at dusk; N’s giant smile; catching up with K; a really good mail day; an easy dinner and going around the table saying one thing we learned and one act of kindness we each did; laughing at dinner; wrestling with O and hearing E wrestle with O; a super early bedtime.
3
2 hours ago
Home made-up Skimo practice!  Just Everett and I on Tuesday nights.  A quick hike, sprints, burpies, jumping jacks, and run home.  Did I mention I made his hat?  And one for juniper too!  That with a stressful couple days sent me over the edge and asleep with the kids.  My hearts with you #autoimmunediseases peeps.
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#autoimmunewarriors #skimo #invisibleillness #chronicillness #chronicfatigue #chronicfatiguewarrior #rawarriors #rawarrior #spoonies #spoonie #letthembelittle #training #momlife #tuesdaymotivation #tuesday
0
2 hours ago
Under $8 to buy! 50% on Amazon right now! Link in bio. Grab yours today!
1
3 hours ago
I don’t look or sound the best and sorry for the poor framing, but I finally managed to get a video of “relax”. We’re about to drive around, which is boring for him and I don’t want him to task while I’m driving. It’s easier if he understands it’s a good time to take a nap. As you can see, I put myself in a relaxed, nappy state first and then I stroked him to “transfer” the emotion to him. This is known as emotional contagion or coregulation. He doesn’t have to listen as it is a suggestion, but he often does and it helps him set his expectations regardless. I like this method over asking him to hold a position for a long time. Sometimes that takes a lot of mutual focus and energy that’s really not necessary. I learned this from my favorite book about #bondbasedchoiceteaching, but I’ve never had a demo or formal instruction in it. I hope I’m doing it right? #becomingshadow #englishlab #labradork #instaretrieverfeature #pawsomeretriever #labradorretriever #labstagram #blacklabrador #blacklabsquad #blacklabs #blacklab #blacklablove #blacklabradorsofinstagram #labradortime #labradorlovegram #welovelabs #instaretrievers #retriever #spoonie #servicedogintraining
3
12 hours ago
71 views